For these individuals, provided there is no other relevant heart disease, it may be appropriate to have follow-up echocardiogram and/or CT scanning every 2 years. I have read that strength training is beneficial for heart health. They included a web link to the European medical guidelines. Really helpful. All Rights Reserved. Lastly, Id say that BAV alonewithout leakage or narrowing of the aortic valve, and without enlargement of the nearby aortawould not preclude sports activities of any sort. Hi Dr Creswell, Most people require treatment once symptoms develop. At this time, it is not known whether Arnold received the new valve using a surgical aortic . Could he be over-cautious? That is except for the last two months hes had several illnesses ( influenza, bronchitis, URI). Arnold Schwarzenegger's Heart Valve Surgeries (2020 Update) I am riding my 3 rd anual Belgian Waffle Ride today. Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. From the outside, these people look healthy, and some are, while others are not. The Cardiologist now suggesting taking beta blockers as a way to slow things down and has advised that anywhere from 4.5 to 5.0 is where he would consider intervening. And judgment would be needed. Also is it possible to never need surgery to replace the valve and that the AR stays stable, or even goes away ? At this time, it is not known whether Arnold received the new valve using a surgical aortic valve replacement (SAVR) or atranscatheter aortic valve replacement (TAVR). Im not sure how those two problems would be related. As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. Should I increase amount of weight? The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. Crossref Medline Google Scholar. Bicuspid Aortic Valve (BAV) - Frankel Cardiovascular Center The more common form of bicuspid aortic valve occurs in a valve with three cusps with . There are just so many causes of shortness of breath, lightheadedness, and chest pain.even besides the heart-related causes. Contact Editor. They all cause a small bit of obstruction to blood flow as it leaves the heart. Im just going to do my very best to stay the course and have annual echoes to track my valve. Mayo Clinic Q and A: What is a bicuspid aortic valve? Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. What is your opinion about dissection in low/controlled messures? Thats always the concern with new techniques with limited follow-up data. After a 6 month ramp up, will the Porcene valve take the stress of the 5 rep sets? Could the changes in my LV be the result of the physiological, not the pathological change? I just need to know if these sports are a possibility (im pretty sure football is a no given its contact nature). I am a cycling Masters racer (Cat 2) for last 25 years . He was forced to stop playing football at 11. I'm new to this group, so I'll be rather short. I met an old guy once after a run and he described me very well his running experience; he said when I accelerate, Im the only one to know. And of course the problem occurs in everyday, recreational athletes, too. BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. Questions about Bicuspid Aortic Valve!! : r/AskDocs First, a disclaimer.My practice is devoted to adult patients. At the age of 12, she had a procedure to widen her valve as her heart condition continued to have an impact. The surgeon I used told me that he had performed keyhole surgery once but wasnt sure if it would be of much benefit to me. No other issues. I asked my surgeon and also the echocardiographist about my sports performance after full recovery, about 6 months after the surgery. I like to practice MTB and running competitively in local races. In 2017, there were 3,046 deaths due to rheumatic valvular heart disease and 24,811 deaths due to non-rheumatic valvular heart disease in the United States. I have ramped up my walking to 30 minutes, keeping my heart rate under 100 bpm. So my question: does there appear to be any performance advantage of tissue valves over mechanical or does the fact that Im on the anticoagulant anyway make the mechanical valve sort of a no brainer choice? Danny. 2; Thanks for the infoI really appreciate what you,have to say. This can cause the valve to malfunction and prevent blood from flowing correctly from the . Schwarzenegger visited USC on April 16, 2007 and saluted the new Cardiovascular Thoracic Institute (CVTI), according to a press release issued by The Keck School Of Medicine at USC. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). Instead, even with continued sports participation, the progression of both valvular and aortic disease is no different from that in the general population. I was born with a BAV and but I didnt notice performance issues until the Summer of 2016, so I brought myself to the doctor. Aortic root is 4cm and currently waiting for a 6month check up to see how it`s going. I get sporatic tingling in my left hand and footand every so often in my left cheek bone. There are certainly athletes whove returned to their sports after valve (and aorta) repair/replacement. Stress echo revealed hypercontractile with normal response in all LV segments, no LV cavitary dialiation. However my Sinus of valsalva is dilated between 45-47mm (depending on the machine used). Advertisement. Aortic Stenosis An abnormal aortic valve develops during the early weeks of pregnancy, when the baby's heart is developing. Do medications like beta-blockers limit any potential harm? Functionally bicuspid aortic valve (type 1). My mom [and aunt] passed away [in their 60s from heart disease], and my dad had a heart attack when I was around 10 and he had a triple bypass, the actress told PEOPLE. Thank you for what you do and for your responsiveness. Very much appreciate this site, thanks Larry for giving people like us a place to voice our concerns ! I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. If youre uncertain about any advice youve received about exercise, you might try to seek a second opinion that may provide some extra confidence about exercise. How much exercise is too much for someone with a functional BAV? In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. This award-winning website has helped over 10 million people fight heart valve disease. The doc says the big risk is due to the blood thinners. Dear Dr. Creswell, No one loves life more than I do, read the statement. It seems to be a very interesting option for those who have aortic dilatation due to Marfan or BAV (which is my case). Hey is a frustrated guy. Additional types of patients who should ask for a TAVR evaluation include: Bicuspid aortic valve patients who are experiencing symptoms. Doctors at the Frankel Cardiovascular Center's Comprehensive Aortic Program have . Last few weeks Im getting chest pain on left side (very rarely on right side) while running and doing push ups. One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. "Were saying to put the focus back on you and make a date with your heart.". Do we have a choice with him only being 15??? Again, thank you and bless you for taking the time to talk with us here! There was only a 0.2 cm increase in the previous 7 years (so from age 21 to 28). Average STS score was 1.7%. His aorta is lightly enlarged. Celebrities with Bicuspid Aortic Valve - Diseasemaps transcatheter aortic valve replacement (TAVR), Mick Jagger's Heart Valve Surgery: Top 5 Facts. Chris Pratt to Marry into the Kennedy Family. I am 26 yera old , I have aortic aneurisem. But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both. I have found your article(s) very useful amongst what I see as so much mis-information out there. The important considerations in athletes with BAV are the degree of regurgitation of the valve and the degree of enlargement of the aorta. Early after operation, and for perhaps the first month, we typically limit activities that place stress on the shoulders and sternum. Is it possible that the valve will get loose? Keep us posted! Ive seen several cardiologist and they are divided in recommendations. Dear Dr. Creswell, This is thought to occur at a rate of about 0.1% per year in adults. This would be a major operation.and would certainly be invasive regardless of the particulars. 2023 Cond Nast. Could I continue to train and just cut out the blood chokes? Measurements of aortic diameter can be made with echocardiogram. 24 HOUR GYM I otherwise feel very healthy, other than (I think) normal slowing down that comes with age. If the valve is smaller than needed, there can be a limit to the ability of the heart to do extra workand that can show up as less speed. Enlarged ascending aorta 42-43 mm Is a CT or MRI absolutely necessary for measuring the aortic diameter? I take BP medication namely Amlodopine & Ramipril which has lowered my BP. When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work. For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. Your email address will not be published. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. There are many surgical options depending upon the particular circumstances. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. Lynn. I have bav with mild dilation of aorta 39mm. If so, how quickly? There are simply no reports that describe the experience of athletes returning to ECer ise (or training) after aortic dissection. Can you clarify what may not be true please? He also has minimal leakage at the valve aorta. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. I found a cardiologist with whom Im quite happy with. And I took him for check up every year and nothing change and he never had any symptoms. 1. The CVTI was created under the leadership of Dr. Vaughn Starnes, chair of the Department of Cardiothoracic Surgery and surgeon-in-chief at the Keck Medicine of USC. Just double checking. I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). I dont know anything about crossfit but I see his times are average on that page. I feel as though Im recovering well and, having no other conditions or comorbidities, rapidly. I exercise, eat well and keep my weight down. Mild/moderate regurgitation. (liver cysts noted). Celebrities With Heart Disease - Celebrity Heart Health Survivors. Business, Economics, and Finance. Thank you so much for your reply. celebrities including musicians, actors, TV personalities, politicians, entertainers, and sports figures, etc. And now my aortic root is 42 mm. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. Throughout the years he has played football and basketball. I am an amateur runner, I do not participate in competitions. We dont know what to do. Activities are not usually restricted for athlete patients with mild aortic stenosis. What a great resource! 2. Call 911. My son was just told he made the varsity basketball team as a freshman. I dont believe this has been well studied. Your doctors will be in the best position to offer advice because they will be most familiar with your case. My cardiologist (London Heart Hospital) gave me green light to moderate sport activities (no marathon and weight lifting). I wish you both all the best. Most probably not pericarditis cause I had it once so I know that pain type, but again, maybe its some other type. Ive done the Philly a Marathon a coup,e times and know that its a terrific event. Would you recommend taking beta-blockers at this stage? The exact cause of aortic enlargement in patients is not known. For some reason I did not receive a notification of your reply, so apologies that I havent thanked you before. The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. I will keep you posted. Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. He has mild AS and AR and is otherwise asymptomatic. Individuals with BAV can develop progressive narrowing or obstruction of the valve, leaking of the valve, and . Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. Unfortunately his cardiologist took that from him so he focused his energy and talent on basketball. His last MRI showed a dilation of 4.4cm at his aorta root but his BAV is fine with very little leakage. However, my surgeon told me that he could fit a tissue valve and so would not need to be on warfarin. Thank you for nice article. They can occur separately or together. Also, again, no stenosis or regurgitation, 35 mm ascending aorta. I asked her about surgery. My heart seems to heal, so that speaks well for my future.. View HelpingHeartsCharitys profile on Facebook, View @HelpingHeartsMDs profile on Twitter, View HelpingHeartsCharityMDs profile on Instagram. Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. You didnt mention your age, but obviously youd hope that whatever operation is performed.lasts a lifetime. My questions are Or, is it something that can wait until they get sports physicals in their teens? I had an exercise tolerance test recently and they seemed happy with my results so fingers crossed thats a good indication I can carry on training hard! Use or viewing of any Baldwin Publishing, Inc. article signifies your understanding and agreement to the disclaimer and acceptance of these terms of use. Many thanks again for answering this. 6 weeks later Im still experiencing symptoms that (in the back of my mind) have me thinking about the BV issue. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. after surgery and was playing football again by September. My son is 15 and has grown about 4-6 inches in the last year. Me, i`m nearly 43, male and have BAV. While I do expect to have a replacement done later in life, the repair was the best decision I could have made. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. Bicuspid aortic valve: Basics and beyond | Cleveland Clinic Journal of Im paranoid to exercise too much for fear that I will do damage to the valve. I was hoping that if the ultrasound numbers dont change much, the endurance will not decrease significantly. The current guidelines suggest that sports activities do not need to be restricted for patients with BAV who have no valve regurgitation/stenosis and who have no enlargement of the nearby aorta. Apologies for my slow reply. Thank you so much for your clear explanations. They wont repair my aneurysm unless it was 55mm during surgery or 60mm before surgery. Is this a normal side effect of the heart condition or not? Im not sure I have all the answers from afar. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. Thank you for best websit. I had my AVR almost one year ago. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. 2 Such features need to be considered before surgical intervention. I ran competively for a division 1 NCAA university through college and have maintained a high level of physical fitness since. Normal great vessel size Unfortunately, I really cant point you to such studies. Up until this time shes played volleyball, basketball and has even run track in elementary. Thank you! The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. I first wrote about BAV in a short post here at the blog back in 2009. I dont know all of the important details. Website designed by Gatorworks. He is on meds to slow it down. I seen my cardiologist yesterday and this is the first year in 4 years that the aneurysm hasnt grown a mm. Im due to have an exercise tolerance test soon, but from my dealings so far Ive lost faith in the level of competence of my current cardiologist. Is it like keyhole surgery? Cardiac outcomes in a contemporary population of adults with bicuspid aortic valve have not been systematically determined.Objective To determine the frequency and predictors of cardiac outcomes in a. My cardiologist has told me that, based on how my heart sounds, he doesnt think hell ever have to operate on me. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); I am 31 years old and had my BAV repaired at The Cleveland Clinic in 1999 when I was 15. running? A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. Make no mistake, though. Can BAV cause sudden death incidents in otherwise healthy 40 year old males? The surgery was a full success, and the valve is closing really well now. When we go back to re-replace a patients prosthetic valve, for some reason, it usually has to be chiseled out from the heart. His exercise stress test on 8/5/16 was fine. Rose underwent the procedure last week, and said he would be going home to rest for a couple of weeks before returning in March. He sees his cardiologist every year. Although bicuspid . After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. There is not much scientific evidence about what to expect. All they said is dont really do weight where you can feel the strain in your neck ?!? Interestingly, bicuspid valves are one of the most common forms of heart valve disease. I continued playing hockey routinely until I was in my late twenties. I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old. will need careful consideration by your physicians who know all of the pertinent details. No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. This content can also be viewed on the site it originates from. 2020 Update: Arnold Gets An Aortic Valve Re-Replacement! It makes the heart work harder than it should. I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. If 5% of them dissect, this means 313,914 people. lifting a max bench of 150 lbs Thanks in advance. 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I am 38 and very active (running, cycling, strength training etc). Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. I understand its strenuous activity but if Im for example bench pressing it will get harder for me to put it up at the 8th rep.. She advised us we should start to consider surgery but would follow up with us again in 3 months. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. I was diagnosed with BAV, with regurgitation, no stenosis, at age 63. There are several variations of this procedure that are applicable in specific situations. Replacement is much, much more common. I cant thank you enough for your responses to all the above questions. and my valve is working quite well (mild aortic regurgitation). But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. I have been feeling better than before the surgery and I feel with better condition on the trails. However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the Im 53. In addition, I will get a random bout of lightheadedness when standing or sitting in a awkard position. I am a 36 yo male who was first diagnosed with BAV at the age of 17. Am I crazy? When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. I have found out I have a BAV last year. Like you point out, its always wise to be vigilant after surgery for things that might be amiss.and get checked out. Bicuspid Aortic Valve and Bicuspid Aortopathy Nomenclature and I would very much appreciate your opinion weather he can continue his regular football training or should stop it.
